Meet Jonathan Pitre, from Russell, Canada. Inspirational Jonathan, lives in pain constantly, as around 90% of his skin peels away with the slightest of knocks. Jonathan’s mum Tina has to constantly clean his wounds and redress them to stop the onset of infection. Jonathan’s skin blisters so badly, that the pain gives him the constant feeling of nausea and severe migraines.

‘Butterfly Boy’ The boy who’s skin falls off with the slightest touch.